...you go to a pub on a Friday night to see a rock band....
...and the drummer is your kid!!
(Sent via iPhone, cross yer fingers this even works LOL)...you go to a pub on a Friday night to see a rock band....
...and the drummer is your kid!!
(Sent via iPhone, cross yer fingers this even works LOL)
Posted by
MsAmpuTeeHee
at
8:23 AM
1 comments
I'm not even off track. I'm entirely off the wagon, aren't I.
Well, the best I can do for either of us right now is to share with you this video of MyFavoriteKid's performance at their final drumline competition this weekend. It's sort of a big deal because while they placed 2nd out of the 3 bands in their division, the Percussion section (yes, capital "P") took FIRST PLACE OVERALL. That means that Percussion (and MyFK is on snare) took 1st Place out of 15 bands, and several of the bands they overtook are bands that are two categories higher than then in terms of proficiency during the winter drumline season. BIG DEAL.
If you want to spare yourself the full performance, I suggest clicking forward to the 6:10 minute mark where you can see an isolated percussion-only section. Oh, and if you wait for the 7:15 minute mark...? The kid making that freakin' awesome catch on the rifle??? He's part of the Hands In Motion Club that I facilitate at the high school, the group where the kids make things by hand and donate then to charity. In other words, he's a knitter ;-)
Posted by
MsAmpuTeeHee
at
10:16 AM
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Labels: DrumlineMom
Posted by
MsAmpuTeeHee
at
12:12 PM
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This picture isn't current, and I'd probably posted it way back when, when I took it.
Posted by
MsAmpuTeeHee
at
10:57 PM
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Planter boxes, that is.
Posted by
MsAmpuTeeHee
at
11:58 PM
1 comments
Local (very local) Open Mic Night....
Posted by
MsAmpuTeeHee
at
11:44 PM
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Rolling in late to the Friday morning knitting group, only to find the a birthday party is in full swing....
Posted by
MsAmpuTeeHee
at
10:29 PM
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Another delayed post hung up between my cell phone and the blogger app.
I must be doing something wrong.
I'll investigate....
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Posted by
MsAmpuTeeHee
at
11:13 PM
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I don't know about y'all, but I am feeling SO exhausted lately! This getting up in the morning in the dark is for the birds! (well, actually...even the birds aren't up as early as I am!!)
I'm seriously looking forward to the time change.
Today was nice. I had some free time to myself in the morning, and I used it to go through a few stacks and piles that have built up over the last few weeks. Liberating.
In the afternoon MyFavoriteKid needed some shuttling around, but since he has his learner's permit and needs to get more hours under his belt, I let him do the driving. He's doing great, but I'm still white knuckling it a little bit. I wonder if I'll ever get comfortable enough where I can knit in the car while he drives.
Ha! That'll be the day!
Hmmm.
I wonder if I WAS knitting....would I be white knuckling less....??
Can any of you out there chime in on that??
This evening I went to a little party that involved clothes shopping. I went to one of these parties last year, and I was very skeptical. Basically, it's a clothing designer that retails her line sort of like a Tupperware party (anyone remember those?!). A person agrees to be a hostess and invites a bunch of her friends. The representative shows up with a ton of samples, does a presentation, and then you get try on the goods (because this is clothing and not tupperware, it looks like a lot of women ripping off their clothes and drinking wine though...much more fun!)
You pick out what you want, you fill out an order form, and your order gets sent to you the following week or so. The hostess gets a bonus gift or credit or something based on how her friends buy.
Like I said, I was skeptical last year. The prices seemed a little steep, and some of the things I really wanted to try on weren't sampled in my size (ie big), so I just had to hope it would all work out. It turned out that once my shipment arrived, there was only one blouse I didn't care for, and they had no problem accepting a return. Everything else I ordered I kept. I have been amazed to find that the fabrics are totally what you are paying for. Nothing has faded or pilled, nothing looks worn. The fabrics have totally held their shape, and the look and feel like quality. There was one item I ordered and kept last year that I haven't worn much, but only because it's a little on the fancier side, and honestly, I just dont get out that much! But I do love it, and it fits and looks great!!
This year I learned from that and spent my money on a few things that are more on the casual side. I know that they will get worn to death.
Alrighty. Tired. Early wake up again tomorrow (5:30am...gah!) and then probably up late tomorrow with Halloween! So I'm hitting the hay. xo!
Posted by
MsAmpuTeeHee
at
10:36 PM
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I loooove Halloween.
Every year I add one (ok ok, sometimes two) new decorations to the collection.
Last year, it was Helsa.
This year I picked up some jumbo spiders with a 3-foot leg span to crawl over the side of the house (whee!).....and thennnnnnn....since TheMostImportantGuy now has a good quality projector, I bought a spooky DVD that you aim towards your window:
thanks to TheMIG for the upload!
TheMIG's video was shot to show how it looks in relation to the house, but you can get a clearer shot of the actual video, click here. I bought our copy by way of Grandin Road, where I also bought Helsa last year!
We already had a little audience (the neighbor kids from across the street) sitting outside and watching and squealing....and then I spotted another adult neighbor getting into it, too. This is by far my favorite decoration ever.
Posted by
MsAmpuTeeHee
at
11:04 PM
1 comments
oops! I just discovered that this post got hung up in the system as a draft!
day late, dollah short ;-)
sorry!
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Dinner at South Park Cafe in San Francisco....
Posted by
MsAmpuTeeHee
at
10:48 PM
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Posted by
MsAmpuTeeHee
at
10:49 PM
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Great day with the cousin. We got up early and took a little driving/sightseeing tour of the town, and then we dropped Teeny off at my parents for some dog-sitting (she's still on meds and supposed to be resting). Then my cousin and I took his 8 month old standard poodle Manou and my other dog Riley for to what we refer to as the CrazyCrazyDogPark.
We had brunch at the dog park at the "Sit & Stay Cafe", and then we let the dogs go bananas running around like crazies. Meanwhile, we talked a whole lot....and we caught each other up on ....well, our whole lives, basically!
We came back home, looked through some of the things my Grammy had left after she passed that he was so graciously delivering (he's an angel for taking that on). A bit later my folks came over and we all had a lovely dinner.
Oh, but before dinner was drinks and an appetizer while we waited for TheMostImportantGuy to make it home from work. While we sipped and noshed, all sorts of awesome old photos were being whipped out. My favorite of them all was this one:
Posted by
MsAmpuTeeHee
at
10:18 PM
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I'm busy being the hostess with the mostess!!
Posted by
MsAmpuTeeHee
at
11:12 PM
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Well, good thing yesterday was good.
Today?
Not so good.
Posted by
MsAmpuTeeHee
at
11:51 PM
2
comments
Wow, after that long day yesterday accompanying the kids on their competition, I "slept in" (and that's in quotes, because sleeping in only meant sleeping until 8:30am, but that's late for me!) and I woke up feeling like I had a hangover. But I didn't even drink yesterday! I felt trashed most of the day, and I wasn't even the one competing yesterday! I can't imagine how the kids must feel.
After a late breakfast, MyFavoriteKid headed off with his dad for their band practice together (rock band, with their first gig with MyFK as dummer set for mid-November). TheMostImportantGuy and I went up to Napa and stocked up on groceries because my cousin is coming to visit this week.
We took a break in the middle of our shopping excursion for some lunch.
Posted by
MsAmpuTeeHee
at
11:38 PM
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Ahhhh, the first Fall Season Marching Band Competition....
Posted by
MsAmpuTeeHee
at
10:41 PM
1 comments
Hang around here long enough, and you'll finally get some content, right? LOL
I know there have been a lot of fluffy "filler-ish" type posts here lately, and I'm sorry for that, but behind the scenes, I am really busy working through A TON of stuff. Some of it's logistical and has had me a in a time-sucking vacuum, but a lot of it has been emotional, and I have been left feeling quite drained.
Grab a Cup o' Joe. It's a long one.
A little rambly, too. Sorry.
For those who are new here, I am a volunteer with an organization that matches you up to do one-on-one visits with people in convalescent hospitals that don't get visitors. I started volunteering when I was 23 or 24 (?) and I'm now 46 (gah. nearly half my life!!). Over the years, most of my matches have been short term (the longest was 1 year). This latest match has been different, though. I have been visiting James for 9 years. You can pick up the tone of our relationship in posts like this one, or this one, or this one (that last one is oddly related to this post, actually)....and there are probably a few other posts I have made over the years that I cant put my finger on right now. I swear that somewhere I have posted a photo of James, but I just can't spot it. Feel free to have yourself a little scavenger hunt ;-) Sort of a Where's Waldo, I guess.
Anyhow.
Here's the poop.
Last Thursday, James went back into the "hospital-hospital" (as we call it, to differentiate from the "convalescent hospital", where he is a permanent resident). I never got a call when he went into the ICU because I am not family. I had to find out from James himself once he was able to use the phone. He called to let me know as soon as he got out of the ICU and was moved to a regular room. He told me he was sent to the hospital, "because he was having trouble breathing due to all the fluid in his tummy, and they drained 5 liters off, and it wasn't all gone, but he was feeling much better."
That call with James took place Friday evening. I called him Saturday and he sounded like he was feeling better and in good spirits. Of course, I can't ask the nurse for a medical update. Well, I can ask. But they wont tell me anything. Because I am not family.
Well, it was Sunday afternoon when I got a phone call from his doctor saying that even though I wasn't family or legally listed as able to speak for him, James had asked the doctor to call me and explain what was happening because he didn't understand, and he knew that I would help him make sense of it all.
Much of what I was heard was new to me. I was told by the doctor that James has End Stage Congestive Heart Failure, and this was being accelerated by kidney failure. The general gist is that his heart is pumping around 50%, his kidneys
are now around 50% as well, he has a persistent infection in his foot
(complicated by diabetes) that has resulted in having two different
surgeries over the past year or so to remove parts of his foot (and he'd
already lost a leg 10 years ago). He's filling up with fluid that his kidneys can't precess, and it's leaking
everywhere. It's in is abdomen, lungs, and basically just all of his organs and tissues like a sponge. They can't get any more off surgically, and they can't it off with medication because nothing is circulating well. The
heart is not pumping the blood enough to get the meds distributed
throughout his body (especially to his extremities), and his kidneys
aren't doing their job to filter the blood, either. And he's not really a good
candidate for dialysis given everything else that is going on.
It's sort of a perfect storm. A
very sucky, very complicated storm.
And James can't make sense out of what the
doctors are saying because there are so many specialists coming and going, and he's exhausted from being woken up every time he dozes off by a nurse or a doctor, and the
information being given is so great that he can't absorb it all. So the doctor asks if I could please come in and support him on Monday and Tuesday, because he is going to have a meeting with a Palliative Care Team and it might be overwhelming for him.
Well, of course I was there for those meetings. I've been at the hospital every day this week, actually. Sometimes more than once each day. Not only have I been in even more meetings than I was warned about, I've also had a few conference calls with James' sister on the line as well.
And so. Here it is. Thursday. And I am now the Durable Power Attorney for Health Care for James.
(I know some of you are yelling "finally" at the screen, but please don't let me hear you. I had to be quite ready within myself to take this on. I mean....it's....ummm...kinda huge.... and I have a whole host of responsibilities of my own already, and it's usually you same "finally people" out there that are the first to nag at me to cut back on commitments so I can take care of myself better, so just shut yer traps! LOLOL)
I'm not taking on James' financial stuff (I am only signing on to manage the health care). His sister is still going to need to deal with his finances. James' sister is 17 years younger than him. She loves him, but she also barely knows him. She remembers him going off into the military when she was a very little girl, and then she remembers that when he came back, he married someone that their mother and her father (James' stepdad) didn't approve of, so after that he basically kept a distance. James' sister cares about him, but she's 300+ miles away, and she cant look into his eyes and see what he needs, nor does she feel she knows him as well as I do, and James is the first to agree. He's been asking me to speak for him for a couple of years, and I just wasn't ready.
I have to be honest. On some level, I feel like I had to accept this responsibility. When it
all comes down to it....if I do not step in and help James with the medical
piece, he is going to be flying blind. It is not in my nature to
leave someone I care about in that state. Heck, it's really not even in
my nature to leave someone I DO NOT care about in that state! (you hear that, InvisibleSister??! Oh, and happy belated birthday! Sheesh.) And
I don't have it in me to know that James will be alone in his
last hours because I might not be allowed to be with him, and he
might not be able to talk at that point and ask for what he needs.
*sigh* this is all so hard
Ok. So.
This week, James started asking me if I would please speak on his behalf once he couldn't do so any longer. That's when I pretty much realized I don't know him all that well...I might not eve know him any better than his sister! I mean, I do know some things. I know that I can "read" him pretty easily, and I can tell when he is upset even when he is trying not to say so. I know what questions to ask to get to the root of what is bothering him or to figure out what his needs are. But never in our 9 together years have we ever talked about feeding tubes, "do not resuscitate" instructions, whether or not he believes in organ donation for himself, cremation versus burial, etc. That's just not what we do with our time together! I visit him to cheer him up, man! We talk about what movies he watched on Netflix that week, or about what he's reading. He asks me about what I'm knitting, he follows along with stories about my family (most of whom he has met over the years, including my late grandmother), and he asks about how the house and the remodeling are going. We have light conversation. We chit-chat. We don't talk about death. Who in this (crazy upside down) society talks about death??! (we are so weird).
This week our visits have been nothing like light chit chat, let me tell you. This week has been the crap-ton of meetings I described a few paragraphs ago, followed by two hard days of "getting to know you" discussions on a whoooole new level, so I could help him fill out his Advance Health Care Directives forms. Then I needed to deal with getting his ID in my hot little hands (which of course was not with him at the hospital-hospital, and I wasn't authorized yet to go into his convalescent hospital room and take something)....but I needed him to have his ID so I could bring in a mobile notary to notarize the documents we were filling out. Bah. I got 'er done, but it was epic.
I'm exhausted. Partially from all the driving back and forth (he's 30-45 minutes away), but mostly from the energy it takes me to "hold space" for a person who is hearing that they probably only have 6 months to a year to live and that they aren't going to get any better and that they really should try to "take care of a few things" (no matter how hard it is) and before they can no longer think clearly. Joyous. Right? *sigh*
It was a whole lot of tough conversations for James and I, but I am so glad we got it done.
You know, I am fully capable of speaking on James' behalf. And I'm fully capable of honoring his wishes. But up until a few days ago, I also had no friggin' idea about what his wishes are, and as we dipped our toes into the waters of these difficult topics, it became clear to me immediately that what I would want for myself, or even what I might wish for him, are not at all the same things. He has a whole different set of cultural beliefs about dying than I do, that's for sure. I'm sort of in the "fling my ashes anywhere" category, and if you are a good listener, I'll send you messages from the other side ;-) I'm in the camp that says, "don't keep me alive on machines for an extended period if I am completely gone." James is more in the "I need my ashes near my family's ashes" category, and he believes that since we can't prove what happens after death, it must just be that we go in the ground. He's also camped out in the keep me alive no matter what, category...because they might figure out some way to fix me. (this has changed since the meetings with the docs...he is now opting to be let go once his heart stops...and that was a very hard thing for him to come to)
Neither thinking is right or wrong, neither is good or bad, but holy cow, are they different positions! And so my job in all of this is to know him and his desires, inside and out, so that I can make sure his needs and desires are met, whether I agree with them or not.
It's been a bit of work for me to do that. Not only getting to know him better, but widening my own belief system to not just accept his beliefs, but to be willing to accept them to the point of being willing to move into action and honor things I don't exactly believe in. It's sort of wild. He's choosing for himself some things that I think may increase his suffering. And I am going to need to honor that.
After 3 days of meetings and paperwork and very hard conversations and a
few tears and some hugs and hand holding....I know I can do it. I know
what he wants, and I know I have it in me to stand by him as he works
his way through his choices. And I know how to be there for him and see
if he's changing his mind as he goes along about anything.
Again, it's wild. And I actually can't wait to watch me in action. I think I'll be a super-star, but it's something I've never done before, so it's really going to be a trip and a half.
I have more to say on the topic, volumes, I am sure....but I'm beat.
And more new things to say about all of this will come up over the next few months, as his health shifts, too.
I think it's safe to assume you'll be hearing more about this over the next few month, so stay tuned.
Posted by
MsAmpuTeeHee
at
11:15 PM
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Posted by
MsAmpuTeeHee
at
10:31 PM
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Filched from my own Facebook page, so pardon if you've seen it already (because after two Redd's Apple Ales I cant come up with anything more creative!).
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Lonely Hearts Club. That's what we call it when you are the only one to show up at Knit Night. Which is at a sports bar. So at least I'm knitting and having a cold one with CardboardCowboy!
Posted by
MsAmpuTeeHee
at
10:05 PM
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Every morning the chihuahua is the last one out of bed.
Posted by
MsAmpuTeeHee
at
10:48 PM
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Posted by
MsAmpuTeeHee
at
10:37 PM
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...when I started this blog, part of my plan was to keep track of all the stupid things people say to me (a person with a visible disability).
I kid you not, it is daily. It's way too predictable. Seriously. There is not one single day that goes by that someone doesn't say something to me about missing a leg, and usually what they say is stupid. (sorry, but it's true. and to all you stupid people out there, I do forgive you LOL)
But. For all the stupid shit that has been said to me.... every once in awhile, someone says something that makes me smile.
Today I went grocery shopping after teaching knitting at the senior center. I parked my car at the supermarket. Before I even put my car in park I spotted the guy out of the corner of my eye. An older guy. I'd even very affectionately call him TheOldCoot type of guy. He was standing in an awkward spot right outside the door smoking a cigarette (it turns out he was waiting for someone he was with to come out). I got out of the cab by using my crutches and I crutched to the rear of
my car so I could unload my wheelchair out of my hatchback (I have a
Honda CRV). I could feel him watching me, and I could feel him trying to decide whether or not to offer help. I could see the outline of him stepping in closer to assist, and I could see him stopping himself when he was seeing I wasn't going to need any help. I got my wheelchair out, opened it up, sat in it, pulled down the hatchback door. Rolled back up to the cab of my car to get my purse and shopping list, and I thought for sure I was going to just get into the store without him saying a word, but then he opened his mouth and sounds starting coming out and I thought to myself "Oh, lordy...here we go. Here comes the stupid."
"You look live you've done that a thousand times."
"Man, I wish it was only a thousand times! But it's been way more than that."
"Well....you aint lettin' any moss grow between yer toes there now, is ya'."
I don't know why exactly.
But I loved that. Totally.
And nope. No moss here ;-)
Posted by
MsAmpuTeeHee
at
11:25 PM
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comments
Please tell me I am not the only one this happens to.
I have a whoooole lotta yarn in my stash. I have a pattern I want to knit. And I don't enough yardage of the right type of yarn in a color that works for the project. How is it possible that if I want to knit this thing, that I need to buy more yarn?!
*sigh*
Posted by
MsAmpuTeeHee
at
10:22 PM
3
comments
...I think they live in the rafters.
bwahahahahaha!
I laugh my ass off every time I see this.
Posted by
MsAmpuTeeHee
at
11:43 PM
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More Snaps On/From Saturday. We had gone to the Vallejo Art Windows event last night, where empty shop windows (and sadly, there are quite a few) were filled with all sorts of interesting local art! During the tour hours, the artists held meet and greets out front of their displays. A few art cars were spotted on the streets as well.
Posted by
MsAmpuTeeHee
at
11:25 PM
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comments
I have a story, but I'm going to have to owe you that story. For tonight, it's 10pm and I am just not feeling quite right....so I'm tucking myself in....toot sweet!
I made two more shopping deliveries today to people at home not feeling well, and one of them had "the plague", as she called it. Well, I am either showing signs of catching it....or actually, I might just be showing signs of not having had enough sleep, doing too much in one day today, and perhaps I might not be responding well to all the smoke in the air from nearby fires (I can indeed smell it, plus we've had a lot wind here, too).
Whatever is going on, I don't feel as well as I should, and I don't have the luxury of down time, so I have to see if I can get some rest and get ahead of this bugger!!
Not much going on tomorrow (yay!) so I will have time for actually sitting and writing something by the light of day for a change!
Nighty night, loves...
Posted by
MsAmpuTeeHee
at
10:10 PM
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comments
Tonight I delivered a bag of groceries to a friend who is under the weather. She met me on her porch for the food swap, but didn't invite me in, I think because she was worried her place was a mess.
There was no need to fear judgement. Little did she know she was accepting a delivery from a woman who had just finished a dinner of cereal eaten right out of the box while driving. Ha.
Posted by
MsAmpuTeeHee
at
11:30 PM
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Posted by
MsAmpuTeeHee
at
11:15 PM
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because laughter is the best medicine